Wednesday, November 27, 2013

The Bleeding Disease


The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress [Kindle Edition]

Author: Stephen Pemberton | Language: English | ISBN: B0052YLG5C | Format: PDF, EPUB

The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress
Download books file now The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress [Kindle Edition] for everyone book mediafire, rapishare, and mirror link By the 1970s, a therapeutic revolution, decades in the making, had transformed hemophilia from an obscure hereditary malady into a manageable bleeding disorder. Yet the glory of this achievement was short lived. The same treatments that delivered some normalcy to the lives of persons with hemophilia brought unexpectedly fatal results in the 1980s when people with the disease contracted HIV-AIDS and Hepatitis C in staggering numbers. The Bleeding Disease recounts the promising and perilous history of American medical and social efforts to manage hemophilia in the twentieth century.This is both a success story and a cautionary tale, one built on the emergence in the 1950s and 1960s of an advocacy movement that sought normalcy -- rather than social isolation and hyper-protectiveness -- for the boys and men who suffered from the severest form of the disease. Download latest books on mediafire and other links compilation The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress [Kindle Edition]
  • File Size: 1322 KB
  • Print Length: 398 pages
  • Page Numbers Source ISBN: 1421401150
  • Publisher: Johns Hopkins University Press; 1 edition (May 27, 2011)
  • Sold by: Amazon Digital Services, Inc.
  • Language: English
  • ASIN: B0052YLG5C
  • Text-to-Speech: Enabled
  • X-Ray:
    Not Enabled
  • Lending: Not Enabled
  • Amazon Best Sellers Rank: #1,420,378 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
As an older hemophiliac who wasn't involved in the bleeder community until the AIDS epidemic it was fascinating to learn the details of what went on then. While the writing is dry and academic, this book covers more broad factual ground in an more objective way than books like "Blood Saga". I do wish the author had spent more time on questions like why patients, doctors, and bleeder groups pushed so hard for the use of factor concentrates to acheieve a "normal" life when there already were serious problems with blood-borne diseases (like Hepatits), or how the modern bleeder community has largely marginalized women with hemophilia and people with Von Willebrands disease even while claiming to pursue the best care for all. Everyone who works with bleeding disorders should read this book.
By Bob Graham

The Bleeding Disease: Hemophilia and the Unintended Consequences of Medical Progress Download

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